Godwinked

Yesterday began with a Godwink but I didn't realize it until later that evening...

This hasn't happened in YEARS, Wyatt didn't take his morning meds which includes his ADHD medicine. My boy had a TERRIBLE morning at school and I got the text from his teacher saying he was out the box. The text came as I was finishing up an appointment so I drove straight to school to get him. He was not happy because he knew I wasn't happy about having to pick him up early. Y'all don't understand, I drop him off everyday and wait for a phone call from school... EVERYDAY since 1st grade! So when we got home and saw he didn't take his morning meds I felt a little better because at least there was a reason for the behaviors at school.

As the day went on, he relaxed and pulled himself together. I then hear him call me (we have gotten to the stage that he needs help off the toilet.) and I go to help him and he looks at me and says..."Mom, I can't walk much anymore". I paused, I was caught totally off guard, and then said let's get to your room and talk. I helped him out of his chair and he put his head on my leg and we cried and cried. He said I sad I won't walk much longer mom. I hugged him tighter and I asked questions about how he feels about all the changes and found out he is scared and sad and worried and he is tired. I told him it was exactly how I felt and that it is OK to feel that way and I was so happy he told me about it. I asked him if we need anything at home or school to make sure we are as ready as we can be and he says I'm ok.

I can only imagine what he is feeling because I know how I feel and I am not the one losing my ability to walk. So we will take it one day at a time. I know we are prepared for it physically but emotionally I AM NOT prepared. Set a little intention for me to find some peace in my journey because this is really hard.

I did want to say that today's post was really just going to say:

"I'M NOT GOING TO WALK MUCH LONGER." -Wyatt 4/20/22

But I then realized that because Wyatt missed his morning meds it allowed us to have that special time together and talk about how much DMD has stolen from him and how we are going to get through it TOGETHER! And then GOD WINKED!