Welcome to Laughing through the Tears: The journey of a mom with a special needs son

Since my last post I have been trying to think of what a good title for my next one would be and as strange as it sounds Let It Go keeps...

As we all have routines and have come to depend on them, today proved that theory correct. Since the 2020-2021 school year started, I...

Patrick and I grew up in the same community and had many of the same friends through grammar school and high school. When we started...

The other day while completing Wyatt’s math lesson with him we had to have a heart to heart. Math is one of Wyatt’s hardest subjects. It...

On Sunday March 21, Wyatt fell when stepping down into the garage. I was standing right there in front of him and watched it in slow...

In 2016 we started the process of getting on a list for Wyatt’s service dog. We knew the wait would be up to 2-3 years so we felt that...

Do you ever feel there is no way you are prepared to deal with the situation at hand? This can be anything from family and friend...

Last week was emotionally exhausting. It started off with virtual advocacy with over 400 people in DC on zoom calls. 2 other families,...

DREAM BIG, the idea straight from Wyatt’s brilliant mind. As February began we heard of a competition put on by one of our favorite DMD...

Wow...last night was a tough one. After leaving the boys room I told Patrick...oh my God that was sad and depressing and frustrating all...

Recently I was asked to speak for Rare Disease Day, which is February 28, 2021. The most recent request was by The Jett Foundation which...

For a while I have been reflecting and documenting my journey of having a family and one of my 2 sons having a terminal diagnosis. It is...