top of page

Stable Results, Hard Truths, and A New Beginning Ahead 🐾❤️

Aug 19
2 min read

We headed back to Ohio for Wyatt’s annual hospital visit—our most important check-in of the year—and this time we brought an extra set of hands and heart with us… Ava. ❤️


We have been making this trip every August since 2008, and it’s always a bit of a “hold your breath” moment. I know what I see in Wyatt’s physical abilities. I know he has progressed some, but it never feels like much. So getting confirmation that he only declined minimally on one of the upper-limb tests was a HUGE sigh of relief.


A different neurologist saw Wyatt today, and she was honestly floored by how strong his upper-limb strength is. I truly believe the Capricor trial is working!!! 🙏🏻


We got the final cardiac MRI results, and we were very happy with them. His ejection fraction actually went UP 2%, so he is STABLE, and there is no change in the scar. His cardiologist didn’t want to adjust anything, which is another big sigh of relief. ❤️


His lung function has decreased some, so we came home with some homework—mostly getting him to wear his BiPAP at night, which is always a struggle. We have a plan in place, and we’re hopeful it will help.


This trip, we did things the same way we always have—flying to Columbus (2 flights), renting a van, lifting Wyatt into the front seat, and loading his travel chair into the back. But it’s definitely getting harder for me to do all of that on my own. Soooo, I’m waving the white flag. I’m going to stop flying without Patrick or Wynston.


I’ve already torn my rotator cuff, and now I’m dealing with tendinitis. I need to take care of myself so I can continue taking care of Wyatt at home. So next year, we will drive… just like Patrick said I should have done this year. 😂


Sometimes I still think I’m Superwoman and can do it all, but this trip was a reality check. It’s not good for me, and it’s not safe for Wyatt. As hard as it is to admit I can’t do everything, I know this is the right call.


And now for the REALLY exciting news… 🐾❤️

Wrigley’s trainer has found a dog she believes will be a perfect fit for Wyatt. Wrigley is TIRED and ready to transition into retirement. As many of you know, service dogs are incredibly special—they are not cheap, but they are worth their weight in GOLD.


We met him on Sunday, and the connection between him and Wyatt was instant. One of those moments where you just KNOW. 🥹


So be on the lookout over the next few weeks because we’ll be doing a fundraiser to help with the cost of getting LEX fully trained. We are so excited about the possibility of this new furry friend joining our crew sometime in late 2027. 🐶❤️


For now, we are celebrating STABLE. We are celebrating strength. We are celebrating another trip in the books.

And most of all, we are celebrating Wyatt and the fight he continues to show us every single day. ❤️

 
 
 

Comments


Subscribe Form

Thanks for submitting!

  • Facebook
  • Twitter
  • LinkedIn

Š2021 by Laughing through the Tears: Journey of a mom with a special needs son. Proudly created with Wix.com

bottom of page